After his sister’s demise, tech entrepreneur works to help patients communicate their health history

A Silicon Valley entrepreneur has taken on a bureaucratic nightmare the very sick have discovered themselves in when attempting to get help — the nightmare of speaking their health history from one physician to the subsequent, one medical heart to the subsequent.

Entering the headquarters of Anil Sethi’s Silicon Valley startup, a portray of a free-spirited girl is within the place the place a company emblem would possibly in any other case loom giant. The artist depicted one individual: His little sister, Tania.

“Tania was always more spirit than flesh,” Sethi informed CBS News’ Dana Jacobson. 

When she was 46 years outdated, docs on the Johns Hopkins Medical Center gave Tania two weeks to reside.

“She always thought she could beat this. She tried a bunch of different kinds of therapies,” Sethi stated.

Sethi joined Tania on her journey to combat end-stage metastatic breast most cancers. He introduced help and thought his information of the health care system can be a plus. 

“I’ve been doing what I do now for a little over three decades, and what I do is electronic health records,” stated Sethi.

He took a depart from Apple, which had lately acquired his health care company. It was throughout this time he seen some issues in how medical data was shared.

“While I was following her around during her treatment in that last year, she was seen at a ton of places, and that means she left a breadcrumb trail of her medical information behind her wherever she went. And it just is fragmented,” Sethi recalled.

“Health care is still using a lot of fax and pagers, and this is the 21st century,” stated Sethi. 

Disparate medical-record holding within the twenty first century was a intestine punch Lynette McMahon did not want both. She was recognized with cholangiocarcinoma, which is bile duct most cancers.

Chemotherapy had helped, however she needed to be in a scientific trial matched to her and her illness — one thing Sethi additionally needed for his sister.

“I was sitting in her hospital room at Hopkins, and I’m furiously going through all the clinical trial websites that are out there but I can’t find anything. The organization isn’t meant to be searched,” he stated.

If there was something to save his sister, he could not discover it. Tania would lose her battle to most cancers. 

“She was telling me, ‘Well, what are you going to do?’ And I said, ‘What do you mean?’ She goes, after I die. And I said, ‘Look, I don’t know.’ And she said, ‘Well, here’s what you’re not going to, you’re not going to retire, and you’re not going to take a sabbatical, and you’re not going to go to the beach.’ And I said, ‘Yes, ma’am.’ And I know that was the initial motivation for Tania to push me to do this work,” Sethi stated.

His sister’s final want was for him to use his expertise to help on a regular basis residents lower via a bogged-down medical paperwork. He based a company, and named it Ciitizen.

It’s a web based system for patients to add and digitally home their medical information. The service is free to all patients.  

McMahon was an early adapter, with outcomes.

“I was getting ready to go back on chemo, and just at that time, Ciitizen sent me an email, said, by the way, we were looking over your data. Here’s some clinical trials we think you’d be interested in,'” McMahon stated. Every week later, she began therapy, “and it’s because Ciitizen sent me that information.”

Ciitizen is now in it is third year, and Sethi is fueled by an unrepeatable motto underneath the portray of his sister to get again at most cancers. Cancer patients are the place to begin, however he’s decided to give all residents, sick or not, their personal particular place for their medical information, and match those that are sick to trials. 

“When Tania died, I saw what happened in her medical records. And all the good stuff is in the clinical notes. And that isn’t available. And I know how to get that. So a lot of jigsaw puzzle pieces fell together, and it just made sense,” Sethi stated.

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