Teen one of 13 people in world with rare fat loss disease

It may sound like a superpower — however it’s truly a debilitating disease.

A UK teenager is shedding mild on his super-rare affliction — which impacts solely 13 people worldwide — that stops him from retaining fat, amongst different horrific problems. However, regardless of being unable to placed on kilos, the courageous boy isn’t shedding hope.

“I am a lot more than just my condition, which is why I feel it is so important to share my story,” Dylan Lombard, 18, informed Caters of his brave battle.

The Glasgow, Scotland, native suffers from Mandibular hypoplasia-deafness-progeroid syndrome, or MDP syndrome, a untimely ageing disease that stops fatty tissue from being saved subcutaneously. It outcomes in an undersized decrease jaw, deafness and “beaked nose,” per the Genetic and Rare Disease Information Center.

Since it impacts only one in 600 million people, Lombard is simply one of 13 recorded MDP sufferers on the planet.

Dylan Lombard, 18, has Mandibular hypoplasia-deafness-progeroid syndrome.
Dylan Lombard / Caters News Agen

Despite being born with the genetic situation, the unlucky lad’s signs didn’t “become visible until I was 18 months old,” he mentioned.

“My mum was seeing me drop a lot of weight and became understandably very worried,” Lombard defined.

Nonetheless, attributable to MDP’s obscurity, it took a mind-boggling 10 years and fixed physician visits earlier than physicians have been capable of formally diagnose him, Caters reported.

The situation is a untimely ageing disease that stops fatty tissue from being saved subcutaneously.
Dylan Lombard / Caters News Agen

“There [are] only 12 other people in the world who have MDP besides me,” mentioned Lombard, “but when we got the diagnosis, we were just relieved because we finally knew what it was.”

Not surprisingly, rising up with the rapid-aging ailment hasn’t been straightforward for Lombard, who’s needed to endure fixed stares and merciless feedback.

However, the plucky teen says he’s “learned to not let it affect me as I have gotten older.”

Lombard was born with the genetic situation, however wasn’t recognized till he was about 11 years outdated.
Dylan Lombard / Caters News Agen

“I surround myself with those who support me and love me for who I am,” mentioned Lombard.

And whereas his fragile determine prevents him from taking part in contact sports activities, he enjoys taking pictures — a ardour that was instilled when he was 11.

(*13*) defined Lombard. “They encouraged me to take more, and I have been snapping ever since.”

Due to his situation, Lombard is unable to play sports activities.
Dylan Lombard / Caters News Agen

He continued: “At 15, my mum bought me my first camera, and I haven’t looked back.”

The proud Glaswegian steadily attracts inspiration from his hometown, capturing its essence by way of his personal distinctive notion.

The teen says in the end he desires to make use of his story to unfold consciousness about MDP.

“I think I am at a stage in my life where I just really want to help educate people about my condition,” mentioned the brave Lombard. “I love to tell my story, reach out and connect with people from all around the world.”

However, Lombard has grown a love for images.
Dylan Lombard / Caters News Agen

“When I do, I honestly believe it makes me stronger and a more confident person,” he added.

Lombard hopes that he can encourage others to stay life to the fullest.

“Nobody should ever be afraid of who they are, and it is important to just keep doing what makes you happy,” he mentioned. “Perseverance is key — never give up.”

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